Mia Culbert was born four months premature and lives with a severe form of cerebral palsy.
“She has hearing loss, she is non-verbal,” said Teresa Kuypers, Mia’s mom. “She’s in a wheelchair, so she can’t sit or roll over or hold their head up or anything like that. So she’s fully dependent.”
The eight-year old travels to Vancouver at least four times a year undergoing assessments and a variety of procedures at B.C. Children’s Hospital.
“She has had many surgeries and procedures through her life,”Kuypers said.
But getting Mia around is getting more and more difficult.
“As Mia gets older and gets bigger, it’s more challenging, ” said Aaron Culbert, Mia’s dad. “Currently we have an SUV where we have to carry Mia out of her chair, put her into her car seat, and we have to lift the chair into the back of the vehicle and then of course we have to do that process in reverse.”
The email you need for the day’s
top news stories from Canada and around the world.
To make transportation easier, the family is hoping to purchase a wheelchair-accessible van.
“To have a configured van where we can, you know, she can just get rolled straight in there and she doesn’t have to get removed from her wheelchair, it would just make life much easier,” said Culbert. “Even more dignified.”
But it’s not cheap with a price tag of $108,000.
“It covers the cost of the new van and the conversion,” Kuypers said. “So the conversion is putting in a ramp. I think they lower the floor. They take out seats. It’s quite a process and just that part is about $55,000.”
To help cover the costs, the family is holding an upcoming fundraiser called Mia’s Ride.
“If we didn’t need a van for her, we wouldn’t be purchasing a new vehicle right now,” said Kuypers. “It’s above and beyond what our family can afford.”
The fundraiser is slated for Saturday, March 9 at Grizzli Winery in West Kelowna from 1:30 p.m. until 4:30 p.m.
Tickets are $35 and include a glass of wine, and the event will feature a silent auction and art sale.
Tickets can be purchased on the Mia’s Ride website, where donations can also be made.
“We’re just parents like anyone else and we’re just trying to do the best to advocate for our daughter and provide the best life that we can for her,” Culbert said.
© 2024 Global News, a division of Corus Entertainment Inc.
